Updates are evil

Hi all, not much that's new. Jen is doing well, been eating normally for over a month so that's fantastic. Her glucose sensor is on it's way, and no word yet from UCSF but we expect it soon (no, really).

No news is good news, unless it's...um, bad. But that ain't (contraction of: ai, not Example: I ai not going to be a phat skinny pimpin' at da clubz wit all da hoes this fine evening.) the case.

Meh

Jen has been doing well until last night, she had a low blood sugar episode but is OK now. We are still in a holding pattern until we get the OK from UCSF to transfer her there. I am also pushing them to install the glucose sensor now as opposed to after she gets out.

In other news, go see Wall-E. It's amazing. And if you're wondering what I'm going to be wanting for my birthday, it's the 'Ultimate Wall-E' shown here

Success

They removed Jen's chest port yesterday, so she's on track for getting to UCSF within a week now.

Progress...

Rolling along...

No new news to report, Jen wants another dialysis session with the fistula (Wed.) before she's ready to remove the chest port. Everything else is still holding true...

News to squish by

This pink sample of cephalopod Coleoidea of the order Octopoda arrived this week. It made Jen squeal. That is good.

Jen's fistula has been ruled 'acceptable'. This means that her chest port is going to be removed probably by next week. After that it's a week of antibiotics and then on to UCSF!

“It has become appallingly obvious that our technology has exceeded our humanity.”

I ran across this quote from Albert Einstein last week and thought it fitting for the health care industry.

Glucose sensor

They approved the Dexcom glucose sensor for Jen! This is very good news, the sensor will be crucial for Jen to maintain her overall health outside of the hospital.

There is a wish of the higher ups at Kaiser to move Jen straight from Kaiser to UCSF. We will see what the final decision is soon, they still need to talk to UCSF about what protocol they wish to use.

Jen continues to improve, she is eating semi-regularly and her tube feeding moved from a constant 24 hour cycle to a 12 hour cycle at twice the rate.

Updates

Jen was completely unresponsive this morning, but apparently that is due to the fact that they did the echocardiogram on her and she was still groggy from the sedative. I don't know the results yet, but I'm sure glad they let me know that it was happening today. (They didn't.)

From the sound of it her chest port will come out next and they they are looking to release her home, and then to UCSF. I'm not sure what to do though if she comes home now...she needs monitoring while I'm away at work but I don't want it to be invasive. I've looked at setting up a network DVR...the problem is she doesn't want to feel as though she is being babysat which I completely understand. We'll start with the training for the dog when she gets home from UCSF, whenever that may be.

Confused about the internet? Gabe and Max explain it all the in a quick and easy way!!

http://www.youtube.com/watch?v=PPsUmhqncAg

http://tv.boingboing.net/2007/12/07/gabe-and-max-answer.html

Woodney and Lemenieu

Jen and I were watching 'The First 48' on A&E a week ago and a suspect's name was 'Woodney Lemenieu'. Jen took an immediate liking to the name and laughed every time it was mentioned. I took the opportunity to paint (I don't paint so it that explains the quality) what 'Woodney Lemenieu' conjured up in my head for Jen's birthday and this was the result. I was asked to post it here, and I couldn't without the explanation. That's all there is. (Sorry for the crappy cell phone pic)

Thanks

Jen (and I) want to say thanks for everyone's visits for her birthday. It means a lot to both of us to know that she has such great friends and family!

Question: What do sloth's look like before coffee?

Nothing really new...

The next generation of caring Kaiser staff at a 'patient rights awareness' rally.

Jen is still doing OK, she has only been sick a couple of times over the past month now but each episode only lasts a few hours vs. a few days. They have started to use her fistula for dialysis so progress is being made along that front too.

Totally unrelated but really amazing art video here